About Lucid Rare
Expert discovery for rare disease families, advocates, and clinicians
Our Mission
Lucid Rare exists to make it easier to find credible researchers, specialist centers, and trustworthy resources when you are navigating a rare disease. We focus on clarity and transparency: results point to real publications, trials, and organizations—not opaque recommendations with no trail to follow.
We are not a substitute for a treating clinician. We are a starting point for learning who works on your condition and where to look next.
Who It's For
Anyone looking for orientation in the rare disease space—patients and caregivers, family members, and advocates—especially when specialist access is limited or information feels scattered across journals and registries.
- Families and caregivers navigating a new or rare diagnosis
- Advocates, researchers, and patient organizations seeking credible references
- Clinicians seeking international colleagues with deeper expertise in an unfamiliar rare condition
What Sets Us Apart
Ranked experts & centers
Expert Finder surfaces people and institutions with strong, checkable ties to the disease you name—publications, trials, networks, and patient-facing roles where we can verify them.
Key literature & resources
Important papers and reference points are highlighted so you can read further or share them with your care team—without wading through every hit on the internet alone.
Patient- and advocate-facing guidance
We include practical angles such as how to talk about the condition and where patient organizations fit—always as orientation, not medical instruction.
Transparent by design
Outputs are built from public and licensed sources we can cite. If something cannot be supported, we would rather say so than guess.
How Expert Finder Works
Name the condition
Enter the disease or topic you want to explore. You can use a common name, a gene-related label, or another phrase you already have—Expert Finder is built around what you type.
We gather public signals
The service combines literature, trial listings, rare-disease databases, and organizational information to build a structured picture—experts, centers, papers, and resources tied to your search.
Review and follow up
Use the results to prepare questions for clinicians, reach out to centers, or save a search to Search History when you are signed in—so you can return to it later.
Built On Public Knowledge
Lucid Rare is built with modern web technology and careful use of AI to organize information that already exists in the open:
- Literature & discovery: OpenAlex and related sources for publications and authorship patterns
- Rare disease context: Orphanet and similar references for disease-level structure where applicable
- Trials & programs: Public trial and registry data where we integrate it
- AI assistance: Used to structure and summarize open signals—not to deliver individualized medical conclusions
- Stack: Next.js, React, and TypeScript on a secure, standards-minded foundation
Built in Helsinki
An Important Note
Information, not medical advice
Lucid Rare helps you discover and organize publicly available information. It does not diagnose conditions, recommend treatments, or replace the judgment of qualified health professionals. Always confirm what you learn here with your care team before making health decisions.
Privacy & Security
We take privacy seriously. Account and search data are handled with encryption in transit and protections appropriate to a modern web application. Saved Expert Finder runs are stored only when you use Search History features under your account or session. For details, see our Privacy Policy and Security & Trust pages.
Contact
Questions or feedback about Lucid Rare? Use the contact options listed on your deployment or product page, or reach out through the channels your organization provides for this service.