PRIVATE BETA · APPLICATIONS OPEN
The world's expert
on your disease
already exists.
Lucid Rare reads the medical literature, trials, and rare-disease registries — then shows you who actually works on your condition, ranked by what they have published and how recently. Built for families navigating a rare diagnosis and for clinicians looking for international peers.
In private beta. Results are early and we are still learning — please tell us what is missing.
Built in Helsinki, by people who have lived the problem.
Built on public medical data
LIVING WITH A RARE DISEASE WORLDWIDE
AVERAGE TIME TO DIAGNOSIS
HAVE AN APPROVED TREATMENT
to the right specialist can change a life
How Expert Finder works
Three steps from what you know to who to contact.
Step 1
Tell us what you know.
Enter a disease name, gene label, or phrase—whatever you already have from your journey.
Step 2
We read the field.
We scan public literature, trials, and disease databases—then structure what matters.
Step 3
Meet the experts.
See ranked researchers with match scores and locations—so you know who to read first.
Dr. Helena Bergström
98% match · Stockholm, Sweden
See what you'll get
Expert Finder in three panes: filters, ranked results, and a draft email you can send in one click.
Results
- 98% match
Dr. Helena Bergström
Karolinska Institute, Stockholm, Sweden
- 94% match
Dr. Marcus Chen
University of Toronto, Canada
- 89% match
Dr. Ana Oliveira
Universidade de São Paulo, Brazil
Draft email
To: h.bergstrom@example.edu
I'm reaching out as a parent navigating a recent PMM2-CDG diagnosis. I found your recent work through Lucid Rare and would be grateful for any guidance on specialists or trials we should be aware of.
Thank you for your time.
Built on public medical knowledge
Lucid Rare draws from the open infrastructure of medical research — millions of peer-reviewed papers, every registered trial, and the networks that connect them. Every result links back to the source so you can verify it yourself.
PubMed
PEER-REVIEWED LITERATURE
OpenAlex
OPEN SCHOLARLY GRAPH
ClinicalTrials.gov
GLOBAL TRIAL REGISTRY
Built for families and clinicians
Ranked by who actually shows up for your disease.
Publications, guidelines, trial leadership, and advocacy roles — surfaced with transparent signals.
One who speaks your language.
We surface language coverage when we can infer it.
A first message, written.
Draft outreach you can copy—so you spend energy on care, not composing from scratch.
TRIAL ALERTS
Know when they are recruiting
Research groups open and close recruitment constantly. Lucid Rare surfaces active clinical trials and natural history studies tied to your search.
Your search is yours.
Encrypted in transit; we don't sell your email. See Privacy for details.
What we believe
Three principles that shape how we build.
Transparency over magic
Every expert we surface comes with a traceable reason — which papers, which trials, which networks. If we cannot show why someone is an expert, we do not claim it.
Patients first, always
Most clinical AI is built for hospital IT departments and insurance networks. Lucid Rare is built for the people actually looking for answers — the families navigating a new diagnosis and the clinicians searching for international colleagues working on a condition they rarely see.
Rare does not mean alone
For 300 million people, the right specialist exists — somewhere in the world. Our job is to help you find them, and to give you the confidence to reach out.
Frequently asked questions
Is Lucid Rare a diagnostic tool?
No. Lucid Rare is an information discovery and expert-finding tool. It does not diagnose conditions or recommend treatments. Always consult qualified clinicians for medical decisions.
How do you rank experts?
We combine public signals—publication depth, recency, citations, trials, and organizational roles—into a transparent score. Rankings are not medical endorsements.
What does it cost?
Expert Finder is free for patients and families during our private beta. We may introduce paid tiers for professionals or institutions later.
What about my data?
We encrypt data in transit. We do not sell your email. Saved searches are optional and governed by our Privacy Policy. We are GDPR-aligned.
Who is behind Lucid Rare?
A team based in Helsinki working with research and clinical partners. See About for more detail.
The expert exists.
Let's find them.
Join the waitlist for early access, product updates, and invitations to research interviews.
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