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Expert Finder
Find leading researchers, specialist centers, and resources for any rare disease. Connect your patients with global expertise.
Search by disease name, gene name, or OMIM/Orphanet ID
About Expert Rankings
Experts are identified and ranked based on multiple credibility factors:
- 📄 Peer-reviewed publications on the specific disease
- 🔬 Clinical trial involvement (especially as Principal Investigator)
- 🇪🇺 Membership in European Reference Networks (ERNs)
- 💜 Medical advisory roles with patient organizations
- 📋 Authorship of clinical guidelines or GeneReviews
- 📊 Leadership of patient registries
Data sources include PubMed, ClinicalTrials.gov, Orphanet, OMIM, and patient organization databases.